Free Trisomy 18 & 13 Family Support - National | SOFT

About This Group

SOFT, the Support Organization for Trisomy 18, 13, and Related Disorders, has supported families since 1979. Trisomy 18 is also known as Edwards syndrome and trisomy 13 as Patau syndrome; both are chromosomal conditions that can be diagnosed prenatally or at birth. SOFT supports families through pregnancy, a child’s life, and after loss, and holds its 2026 annual conference in Loveland, Colorado.

Ways to Find Support

SOFT’s Peer-to-Peer Support Network connects families and parents navigating a trisomy 18 or 13 diagnosis with others who understand the journey, to share experiences, ask questions, and receive encouragement. Families can also connect through SOFT’s Facebook group and social media, and SOFT has state representatives who can help connect you with people in your area. The organization’s annual multi-day conference brings families together with medical professionals and researchers.

Who This Is For

Parents and families anywhere in the U.S., including Colorado, who are expecting, raising, or grieving a child with trisomy 18, trisomy 13, or a related chromosomal disorder.

How to Join

Call 800-716-SOFT or reach out through SOFT’s website to be connected with the Peer-to-Peer Support Network or a state representative near you. For more free options, see the Colorado support groups directory on The Group Guide.